Wednesday, August 4, 2010

Home again, Home again, jig gidy jig

Yes we'll do a little dance!  We're home, but still busy enough that we haven't blogged or Facebooked in a few days. And not facebooking is like not getting up in the morning for me!  I don't skip it! Too many follow up appointments and work to be done getting the portagen formula he needs due to the chylothorax, though. (He is on a fat free diet for the next 6 weeks.) We literally spend the first two days home in drs' offices!   The girls came home too and will be with us for the next two weeks, so I can have a "vaca" with them for the summer. They have been really helpful he last two days and honestly I am not sure how I could manage without them.  Growing up fast.  They came to the store with me today and we picked out some fat free foods for Vance that were different than what they gave us in the hospital so he doesn't get bored with the same three veggies and two fruits! Plus I wanted to try to expand the texture of his food a bit.  He seems a bit grochy and tired, which given all he's gone through is understandable. I do worry about his not wanting this portagen and the diarrhea he has had because of it.  He lost about half a pound in the hospital and could lose more this way. We'll check him again in two weeks to see how things are progressing and possibly take him off the lasiks and aldactone if his weight is too low or if there are no effusions. For our non-heart friends, that just means if there is no fluid on his heart or lungs.  His o2 sats are still low mid to high 70's but he looks really pink so that must be better than where we were.  And we still have oxygen available IF he were to need it. He is still cheesing everyone up and learning new ways to catch a laugh or smile from everyone else.  So amazing how HE just wants everyone around him to be happy when he is the one going through so much.